It's already MARCH 11, 2013
....and I can hardly wait for warmer weather so I can shave my hair off my scalp again! This scalp stuff is still up there nagging me. I have yet to find a cure so it is gone, it moves around my scalp, but I will say this it is not as bad as it was when it first began. Thank you God. It has dried up considerably. At first I felt like my brain was floating inside my skull. There was soooo much fluid under my scalp, but now, it has dried up considerably, not much fluid NOW.
Hey, do you smoke tobacco, like those already made cigerettes like Malboro etc....? The ones that have the flame retardent in the paper that the tabacco is rolled into? Well, when my head first started with this stuff I was smoking American Spirit Organic cigerettes, a pack a week....well, then I found out that even these cigerettes were rolled in that flame retardent paper.....I STOPPED SMOKING, my scalp is much better, not as much fluid, not as much itching.
Every day i look forward to washing my hair in Lavender Shampoo which gives it a dryness that feels almost normal, for a while. You can get some of this shampoo at www.essencialdreams.com
but I still have this stuff and my fingers want to touch it and scratch it and separate all the stuck together hairs, and my family is finally getting use to my having my hand on my head when my hands are not busy doing something else. Finally they have stopped telling me to NOT TOUCH my head. What do they know, right?
The best I have felt with this stuff on my head was on the Carribbean cruise my sister gave me in November 2012. We went swimming in salt water and stayed some time in the sunshine every day. I didn't smoke I ate well and I went to accupuncture .
Accupuncture speaks to the organ systems for the skin: Kidneys, Lungs, the lungs most especially. My Accupuncturist treated me for damp heat. He said, the lungs were in charge of the skin. Hence, no smoking. Try these things, and remember PLEASE PLEASE PLEASE if you find a cure let me know. Thanks a million!!!!
Monday, March 11, 2013
Sunday, October 21, 2012
Timeless
Peace be yours. Folliculitis?????? Is that what is on my scalp?????? Today is the 21st day of October 2012 and my scalp is still producing the glue like substance that sticks hairs together and stiffens .....what hair? I have continued to shave my head. I continue( for nine months) to use the QUICK SHOT cortizon 1% spray, it cools and coats and eases the feeling on my scalp. I went to another Dr. of Dermatology.....he said, "don't see a thing on your head, can't treat what I can't see." Thankfully he didn't charge me for that visit.
I've decided that I need a lifestyle change of some kind. I'm to go on a cruise with my elder sister who recently lost her husband. I have changed my diet now too. I eat beef once a week, fish once a week and the other days only veggies. Something has to give.
I will be going to an authentic chinese herbalist and another round of acupuncture. I haven't had acupuncture since the very beginning(almost 3 years ago) because of the deep pain I felt when the needle went into my scalp...I have always loved acupuncture and it never hurt me until that one scalp needle.
Shaving all the hair off is the best thing for me. It seems to be so much worse when my hair is longer, I'm talking a half inch of hair! Can't take it! It's getting cold here in the South USA so hats are particularly comfortable for now.
I'll write again in the future, hopefully I'll be writing about my HEALING! An answer to my prayers and YOURS. {Sunday October 21st 2012}
I've decided that I need a lifestyle change of some kind. I'm to go on a cruise with my elder sister who recently lost her husband. I have changed my diet now too. I eat beef once a week, fish once a week and the other days only veggies. Something has to give.
I will be going to an authentic chinese herbalist and another round of acupuncture. I haven't had acupuncture since the very beginning(almost 3 years ago) because of the deep pain I felt when the needle went into my scalp...I have always loved acupuncture and it never hurt me until that one scalp needle.
Shaving all the hair off is the best thing for me. It seems to be so much worse when my hair is longer, I'm talking a half inch of hair! Can't take it! It's getting cold here in the South USA so hats are particularly comfortable for now.
I'll write again in the future, hopefully I'll be writing about my HEALING! An answer to my prayers and YOURS. {Sunday October 21st 2012}
Saturday, June 9, 2012
108 Days
June 9, 2012
Day 108 of shaving my head once a week and using the cortizone 1% cream. What does this tell you????? 108 days into this new diagnosis.....I'm a little better. My scalp looks a little better on the top of my head, but the stuff is spreading down the sides and the back of my scalp. I also doubt that the whole scalp is actinic keratosis. I have one more doctor to see. What I have starting using which eases the sting and crusty hair is pure coconut oil. I like using this all over my scalp once or twice a day. Hopefully you will find what works for you. I'm still seeking. I know it's related to my activity level that much is for sure. It takes about twenty minutes each morning for my sleeping scalp to begin sprouting up its crusty "stuff". When I'm very active, it sprouts up. When I get anxious, it sprouts up. Every thing I have done so far has helped me get through the day hoping for a cure. A cure would be no more sprouting of crusty sticky stuff, no more dirty roots of my hair, no more darkened dirty looking scalp, no more shaving my hair. HEALED. I'll be so happy, so grateful to finally be able to say that.
Using all my little tips will help you each day, you will see a change. Light and Love to you.
Day 108 of shaving my head once a week and using the cortizone 1% cream. What does this tell you????? 108 days into this new diagnosis.....I'm a little better. My scalp looks a little better on the top of my head, but the stuff is spreading down the sides and the back of my scalp. I also doubt that the whole scalp is actinic keratosis. I have one more doctor to see. What I have starting using which eases the sting and crusty hair is pure coconut oil. I like using this all over my scalp once or twice a day. Hopefully you will find what works for you. I'm still seeking. I know it's related to my activity level that much is for sure. It takes about twenty minutes each morning for my sleeping scalp to begin sprouting up its crusty "stuff". When I'm very active, it sprouts up. When I get anxious, it sprouts up. Every thing I have done so far has helped me get through the day hoping for a cure. A cure would be no more sprouting of crusty sticky stuff, no more dirty roots of my hair, no more darkened dirty looking scalp, no more shaving my hair. HEALED. I'll be so happy, so grateful to finally be able to say that.
Using all my little tips will help you each day, you will see a change. Light and Love to you.
Friday, March 23, 2012
Let's see: Today is March 23, 2012 Friday.
I have received an additional diagnosis, actinic keratosis, not malignant! This is over exposure to the sun. This is what my last biopsy produced from the top of my scalp! I still have dirty roots and a substance that comes up through the hair holes with the dirty roots. My new doctor, doctor #6 told me to treat the keratosis with cortizone 1% cream.
This is a relief. What I did was shave my head. Thank you God. This has been the best thing I could have done. Now instead of getting my hair stuck in the cream, I have no hair and can SEE my scalp with the aid of two mirrors and I can TREAT my scalp fully. I apply the cream and it seems to be melting the build up from the folliculitis. I can almost feel my true scalp again and it has started to itch in places.
I highly recommend any one who is "suffering" from folliliculitis shave the head and treat your head with the cleansers and the cortizon 1% see what happens. This is DAY 25 shaved using the 1% cream. I feel much better and more alive.
Don't forget to call in your Guardian Angels, the Archangels and keep your prayers going out to the Great Spirit. When you do this, their guidance with help you each step. I have had this for sixteen months.
When you find a treatment that works, please post it here too!
Thank you.
I have received an additional diagnosis, actinic keratosis, not malignant! This is over exposure to the sun. This is what my last biopsy produced from the top of my scalp! I still have dirty roots and a substance that comes up through the hair holes with the dirty roots. My new doctor, doctor #6 told me to treat the keratosis with cortizone 1% cream.
This is a relief. What I did was shave my head. Thank you God. This has been the best thing I could have done. Now instead of getting my hair stuck in the cream, I have no hair and can SEE my scalp with the aid of two mirrors and I can TREAT my scalp fully. I apply the cream and it seems to be melting the build up from the folliculitis. I can almost feel my true scalp again and it has started to itch in places.
I highly recommend any one who is "suffering" from folliliculitis shave the head and treat your head with the cleansers and the cortizon 1% see what happens. This is DAY 25 shaved using the 1% cream. I feel much better and more alive.
Don't forget to call in your Guardian Angels, the Archangels and keep your prayers going out to the Great Spirit. When you do this, their guidance with help you each step. I have had this for sixteen months.
When you find a treatment that works, please post it here too!
Thank you.
Thursday, November 17, 2011
Folliclitis of the Scalp
O.K. I understand now. Folliclitis of the scalp is always referred to another doctor. It's happening to me. The first doctor I visited was my family practitioner. He wanted blood tests right away! He wanted to rule out diabetes and thyroid dysfunction. He would not give me a referral to a dermatologist until I give them blood. O.K. did that. I go to the dermatologist and instead of a doctor I have a PA. I felt lucky because she was a SHE and communication would be much better. She treated me for several visits. She took hair with root samples, then a punch biopsy, found a staph infection and the diagnosis of folliculitis. Referred me to a Neurologist, a nerve specialist. She gave me antibiotics and a pill to deaden the nerve endings. The pill for deadening the nerve endings made my hands and toes numb. I stopped taking it. The antibiotics made me sick. The Neurologist referred me back to the dermatologist PA after giving me electrical shocks to the nerves in my right arm and right leg. I declined the next step of his procedure, needles in my muscles. I called into the dermatology office and they wanted to see me right away. I went in, fever and chills and they again took a punch biopsy and blood and changed my antibiotics. Within five days they called to say "come into the office". It was late in the day and no other "patients" were there only staff.
They told me they were referring me out to someone who could help me, that I needed an MRI of my head, and a team of doctors. "Would you like to go to Mayo or Emory Clinic. Being really frightened I chose Mayo. Three weeks later Mayo called me. I couldn't go down to Jacksonville, Florida. We had no extra funds for a visit there. Just recently my husband phoned Emory Clinic and following all procedures gleaned an appointment for me. With hope in my heart for a cure we drove two and a half hours at 6:00 A.M. only to have this doctor tell me that I needed to be referred to a "shrink," " to get to the root of this head picking problem, because your scalp is perfectly normal".
My scalp is anything but normal!!!!! I have an infection of the hair follicle!!!!! How do I get rid of this infection, bacteria, virus, etc.etc.etc. WHAT THE HELL IS IT?????
This dermatologist was trying to convince me that what my hand and fingers are clearing off of my poor aching head and scalp is all in my mind. That I really have a normal scalp, but I think I have folliclitis...regardless of the lab's report.
This morning I had an AHAA moment! Oh, I get it. The diagnosis is folliclitis, that is not treated by a dermatologist. He doesn't know how to stop it, so they give you referrals elsewhere. Which means folks the AMA has no answer for folliclitis. All they can say is "stop touching your head", it will go away? NOT!!
What happens if you don't constantly clean your head of the stuff oozing up through every hair hold is a doming affect. The blisters continue to blister and pop, laying a sheet of ooze on sections of hair, layer after layer after layer after layer and then a dome between the real scalp and your hair rises up off your head! Not to mention all the tiny oil channels filling up with puss or infection creating lots of pain and discomfort, under the dome. Itching that can not be scratched. Burning that can be stopped. It's awful. That's what I did while I was going to the first dermatologist. Not touching my head except to feel it, I couldn't believe what I was feeling either. The last biopsy they took was of the dome, not of my pure little real scalp. Acute Folliclitis.
When I didn't go to the Mayo Clinic, I did go to Dr. Annie Liu. My acupuncturist. She gave me treatments for hair and skin and a recipe for an herbal decoction that would kill staph infection which I had that was causing me fever and fatigue. When I started using the Chinese formula for 3 Yellow Cleanser it began dissolving the dome, clearing my scalp of that "stuff". Dr Liu told me not to wash my hair too much because the bacteria would grow more. Change my pillow cases and sheets each day.
I did that for a while when my good friend, Lay Midwife Sarahn Henderson told me that I should use old fashioned Pine Tar soap to wash my hair every other day. Thank Goddess for this piece of information. I ordered off the Internet and I have been washing every night with this soap to keep the infection down. Then I apply the 3 yellow cleanser with cotton balls to the most infected areas of my scalp then blow dry my hair. So far it keeps all of this stuff on my scalp in check.
I will continue to try to find the cure because I know all of you out there with this folliclitis are having the same problem that I am. When I find the cure I will LET YOU KNOW! I LOVE YOU.
They told me they were referring me out to someone who could help me, that I needed an MRI of my head, and a team of doctors. "Would you like to go to Mayo or Emory Clinic. Being really frightened I chose Mayo. Three weeks later Mayo called me. I couldn't go down to Jacksonville, Florida. We had no extra funds for a visit there. Just recently my husband phoned Emory Clinic and following all procedures gleaned an appointment for me. With hope in my heart for a cure we drove two and a half hours at 6:00 A.M. only to have this doctor tell me that I needed to be referred to a "shrink," " to get to the root of this head picking problem, because your scalp is perfectly normal".
My scalp is anything but normal!!!!! I have an infection of the hair follicle!!!!! How do I get rid of this infection, bacteria, virus, etc.etc.etc. WHAT THE HELL IS IT?????
This dermatologist was trying to convince me that what my hand and fingers are clearing off of my poor aching head and scalp is all in my mind. That I really have a normal scalp, but I think I have folliclitis...regardless of the lab's report.
This morning I had an AHAA moment! Oh, I get it. The diagnosis is folliclitis, that is not treated by a dermatologist. He doesn't know how to stop it, so they give you referrals elsewhere. Which means folks the AMA has no answer for folliclitis. All they can say is "stop touching your head", it will go away? NOT!!
What happens if you don't constantly clean your head of the stuff oozing up through every hair hold is a doming affect. The blisters continue to blister and pop, laying a sheet of ooze on sections of hair, layer after layer after layer after layer and then a dome between the real scalp and your hair rises up off your head! Not to mention all the tiny oil channels filling up with puss or infection creating lots of pain and discomfort, under the dome. Itching that can not be scratched. Burning that can be stopped. It's awful. That's what I did while I was going to the first dermatologist. Not touching my head except to feel it, I couldn't believe what I was feeling either. The last biopsy they took was of the dome, not of my pure little real scalp. Acute Folliclitis.
When I didn't go to the Mayo Clinic, I did go to Dr. Annie Liu. My acupuncturist. She gave me treatments for hair and skin and a recipe for an herbal decoction that would kill staph infection which I had that was causing me fever and fatigue. When I started using the Chinese formula for 3 Yellow Cleanser it began dissolving the dome, clearing my scalp of that "stuff". Dr Liu told me not to wash my hair too much because the bacteria would grow more. Change my pillow cases and sheets each day.
I did that for a while when my good friend, Lay Midwife Sarahn Henderson told me that I should use old fashioned Pine Tar soap to wash my hair every other day. Thank Goddess for this piece of information. I ordered off the Internet and I have been washing every night with this soap to keep the infection down. Then I apply the 3 yellow cleanser with cotton balls to the most infected areas of my scalp then blow dry my hair. So far it keeps all of this stuff on my scalp in check.
I will continue to try to find the cure because I know all of you out there with this folliclitis are having the same problem that I am. When I find the cure I will LET YOU KNOW! I LOVE YOU.
Wednesday, September 7, 2011
Scalp Infection Staph Infection Follicullitis
FLASH!!! This is July 27th/2015. I think we have finally found the cause, Demodex Parasites in the roots of my hair! GET HELP FOR DEMODEX PARASITES! GET A BIOSPY FOR THEM? I'm so sorry that you have any of the above named conditions! I have all of them and it's been since Februrary 2011 since it first started. INTENSE ITCHING. INTENSE BURNING. Blisters that bubble up one on top of another and another, until finally you feel like you have a cardboard scalp.
I went to the doctors, they gave me three rounds of antibiotics and endless shampoos and lotions. Even had two cortizone shots into my scalp....it all seemed to make it worse.
The worst of all is I thought the doctors knew about what to do. They don't really. They actually told me I needed a team of doctors and sent me away with a staph infection on my scalp. Of course in all fairness the doctors wanted me to go to the Mayo Clinic and referred me there, but I didn't have enough $$$$ to go. It's probably for the best though, I took my power back and begin trying to find the cure for myself and you.
What I've listed in my last post definitly helps. You need that Pine Tar Soap in the shower everyday at least once. You need that 3 Yellow Cleanser from the Scar Family too. Even while your hair is wet you can generously with a cotton ball put that 3 Yellow Cleanser on your scalp. WARNING: 3 yellow cleanser turns blonde hair yellow......but it is so worth it. You don't want pus coming out of your scalp, this takes care of that kind of infection....well it has for me. I don't eat sugar or greasy foods. I only use Organic Olive Oil.
This may sound gross to you, but what I do in the shower with the Pine Tar soap is get a good lather going, then kind of dig deeper into my scalp, each time I wash. I have actually cleared the build up that I had. The soap seems to take it down day by day. I can finally feel my true scalp again and every day washing helps me feel clean which is also good for my psychi.
The Cleanser will keep staph in check. It has a drying effect on the scalp, the oozy blisters, the itching and burning and finally long awaited peace. I take some with me when I leave the house. I found that if I sweat my scalp will begin to burn and itch...so I dab it with my 3 yellow cleanser cotton ball. They travel well in a sealed snack bag.
Since I wrote last I have researched what I have. The staph infection is so resistant to antibiotics. Staph will send out a glue like substance that protects itself like a sheild from your natural immune defense system....so....the CDC is telling me that they don't really have a antibiotic that really kills the stuff. Some new ones are in the works, but actually not quite proven to do the job yet.
This kind of reminds me of cock roaches...they learn to adapt to all the bug sprays available and still they live on.
THESE ARE A COUPLE OF REMEDIES THAT REALLY HELP YOU LIVE WITH THIS BACTERIA on your head. If you know of a complete cure, sign up and please POST YOUR CURE!
I went to the doctors, they gave me three rounds of antibiotics and endless shampoos and lotions. Even had two cortizone shots into my scalp....it all seemed to make it worse.
The worst of all is I thought the doctors knew about what to do. They don't really. They actually told me I needed a team of doctors and sent me away with a staph infection on my scalp. Of course in all fairness the doctors wanted me to go to the Mayo Clinic and referred me there, but I didn't have enough $$$$ to go. It's probably for the best though, I took my power back and begin trying to find the cure for myself and you.
What I've listed in my last post definitly helps. You need that Pine Tar Soap in the shower everyday at least once. You need that 3 Yellow Cleanser from the Scar Family too. Even while your hair is wet you can generously with a cotton ball put that 3 Yellow Cleanser on your scalp. WARNING: 3 yellow cleanser turns blonde hair yellow......but it is so worth it. You don't want pus coming out of your scalp, this takes care of that kind of infection....well it has for me. I don't eat sugar or greasy foods. I only use Organic Olive Oil.
This may sound gross to you, but what I do in the shower with the Pine Tar soap is get a good lather going, then kind of dig deeper into my scalp, each time I wash. I have actually cleared the build up that I had. The soap seems to take it down day by day. I can finally feel my true scalp again and every day washing helps me feel clean which is also good for my psychi.
The Cleanser will keep staph in check. It has a drying effect on the scalp, the oozy blisters, the itching and burning and finally long awaited peace. I take some with me when I leave the house. I found that if I sweat my scalp will begin to burn and itch...so I dab it with my 3 yellow cleanser cotton ball. They travel well in a sealed snack bag.
Since I wrote last I have researched what I have. The staph infection is so resistant to antibiotics. Staph will send out a glue like substance that protects itself like a sheild from your natural immune defense system....so....the CDC is telling me that they don't really have a antibiotic that really kills the stuff. Some new ones are in the works, but actually not quite proven to do the job yet.
This kind of reminds me of cock roaches...they learn to adapt to all the bug sprays available and still they live on.
THESE ARE A COUPLE OF REMEDIES THAT REALLY HELP YOU LIVE WITH THIS BACTERIA on your head. If you know of a complete cure, sign up and please POST YOUR CURE!
Monday, August 22, 2011
Monday August 22, 2011
Those itching burning blisters on your scalp need some PINE TAR SOAP. I bought some online at Grandpa's Pine Tar website. I must admit that the condition of my scalp is surely changing, for the better? for the worst? It's hard to say. I have so much oil shooting up from the hair follicules it's unbelievable to me. It just keeps coming and coming. Every day for the last week I have washed my hair in the Grandpa's Pine Tar Soap Original and the oil is consumed and washed away. My hair feels clean and normal, then the oil begins to bubble up again. The very small bubbles, the size of a hair hole come us right at the root which is blackened too. Then the oil glands go into action, sending oil to the surface of my scalp. However, because I have been washing every day I have been able to clear away stiff crunchy layers of five month old dried bubbles and stuck together hairs that formed on the top of my head. My crown chakra.
I continue to treat the wetness and burning that I feel which I believe to be the folliculitis infection with the Scar Family product 3 Yellow Cleanser Kit $9.99, I buy it online too. It takes me a week to use a quart of the solution which is made right in my kitchen.. I frankly don't know if this is a cure just yet. I seem to have an advanced case which went totally untreated until I began this blog. Taking action and empowering myself to find a SOLUTION to this horrible condition that captures so much of my time and energy. But I will for sure let you know when I am free of this and I am trailblazing by writing this blog. Remember, one dermatologist sent me away with a shampoo for hair loss, making me feel "stupid" that surely I was only loosing my hair, silly lady. The next "group" of dermatologists did two biopsies, one culture of a few pulled hairs and then sent me away to The Mayo Clinic so a team of physicians could study me. That's when I had enough of the dermatologists. Now I know there is a cure and I am affirming that my scalp returns to normal. I AM A NORMAL HEALTHY SCALP ONCE AGAIN.
Those itching burning blisters on your scalp need some PINE TAR SOAP. I bought some online at Grandpa's Pine Tar website. I must admit that the condition of my scalp is surely changing, for the better? for the worst? It's hard to say. I have so much oil shooting up from the hair follicules it's unbelievable to me. It just keeps coming and coming. Every day for the last week I have washed my hair in the Grandpa's Pine Tar Soap Original and the oil is consumed and washed away. My hair feels clean and normal, then the oil begins to bubble up again. The very small bubbles, the size of a hair hole come us right at the root which is blackened too. Then the oil glands go into action, sending oil to the surface of my scalp. However, because I have been washing every day I have been able to clear away stiff crunchy layers of five month old dried bubbles and stuck together hairs that formed on the top of my head. My crown chakra.
I continue to treat the wetness and burning that I feel which I believe to be the folliculitis infection with the Scar Family product 3 Yellow Cleanser Kit $9.99, I buy it online too. It takes me a week to use a quart of the solution which is made right in my kitchen.. I frankly don't know if this is a cure just yet. I seem to have an advanced case which went totally untreated until I began this blog. Taking action and empowering myself to find a SOLUTION to this horrible condition that captures so much of my time and energy. But I will for sure let you know when I am free of this and I am trailblazing by writing this blog. Remember, one dermatologist sent me away with a shampoo for hair loss, making me feel "stupid" that surely I was only loosing my hair, silly lady. The next "group" of dermatologists did two biopsies, one culture of a few pulled hairs and then sent me away to The Mayo Clinic so a team of physicians could study me. That's when I had enough of the dermatologists. Now I know there is a cure and I am affirming that my scalp returns to normal. I AM A NORMAL HEALTHY SCALP ONCE AGAIN.
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